| I am Alec I am Alec I wonder if my sister Rachael's disease will go away I hear Rachael from the past I see Rachael playing with me I want Rachael's encephalomyelitis to go vanish I am Alec I pretend Rachael is in front of me I feel her love in my heart I touch her baby soft skin I worry she will never get better I cry that she got sick I am Alec I understand her love for me I say "you're a silly bean" to her I dream about Rachael having adventures with me I try to do my best to make her better I hope we can play again I am Alec |
| To those of you wondering how Rachael's illness has affected the rest of us. Our son was asked to write a poem about himself at school. This is what he wrote |